Home > New Jersey > Newark > Newark Community
looking for other mom's with a child who has NLD
trooper April 26, 2009
My child was diagnosed with nvld at the age of ten. I would be happy to share experiences with you. I can tell you that my child will graduate high school this year, happy and eager to proceed with college. He has received a full. four year academic scholarship. It was a lot of work - but well worth it!! Let me know if I can help you!
Trooper15213
jennie1 April 29, 2009
Thank you - How did your son receive support? ie school, outside therapies? Our child is 14 and recently diagnosed, so didn't have early enough interventions (he's severely depressed & in crisis). We are facing battle with school not supporting NLD diagnosis AND trying to figure where to go to acquire org. and social skills. School wants to address "emotional" issues. Would appreciate any input / advice. From heartbroken mom15212
emerel April 29, 2009
I am fighting the school as well for my daughter. It is hard because they try and make the parent or child wrong. I hired an attorney and am calling her for my last hour so I can get some support. It is hard for them to see what they do not understand. It looks like it is the kid or an overly involved parent. Neither a school likes. I am sorry you are struggling. I would like you to email me privately so I can give some more information but it is not allowed. So let me think about it. Where are you located.
15211
healthy11 April 30, 2009
jennie1, I'm sorry to hear of your struggles, and wonder if your son also has an ADD /ADHD-inattentive diagnosis? Unfortunately, NVLD isn't a "recognized IEP eligibility category," but it frequently occurs with the non-hyperactive type of ADHD, and that could allow your son to receive services under the OHI (Other Health Impaired) eligibility category, rather than ED... Organizational difficulties/executive function difficulties are very common with people who have all types of ADD/ADHD.
If you want to talk to other people with a great deal of experience dealing with NVLD, please join the Learning and Attention Difficulties Group at http://community.greatschools.net/groups/11554, and/or www.millermom.proboards107.com15210
