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looking for other mom's with a child who has NLD


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detfig1 September 27, 2008


Hi, I am a mom of a 13 year old son in 8th grade with non-verbal learning disorder.
I am looking to connect with another mom with a child around the same age with the same diagnoses to exchange stories.

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emerel September 27, 2008


Hi please email me. I have a 12 year old daughter in the process of being labeled with NLD. I would love to talk.

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SoCalGal September 28, 2008


Email me as well, I have a 13 yo non-aspie daughter with a NLD.

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Jamie1 April 1, 2009


Hi I have a son 14 with Nvld and is dealing with emotional issues. I would love to speak with others regarding this topic.

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jennie1 April 22, 2009


Same here - my son is same age. We believe emotional issues are secondary to NLD. That emotional issues are because of NLD not being intervened early on (schools refused to test). How is your son doing?

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jennie1 April 22, 2009


Hi, I'm also looking to connect with other families regarding NLD. My son is 14 and recently diagnosed with NLD. It's been frustrating educationally. Trying to figure out what to do.

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healthy11 April 22, 2009


You'll find more parents of students with NVLD if you join the Learning and Attention Group at http://community.greatschools.net/groups/11554, or www.millermom.proboards107.com

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trooper April 26, 2009


My child was diagnosed with nvld at the age of ten. I would be happy to share experiences with you. I can tell you that my child will graduate high school this year, happy and eager to proceed with college. He has received a full. four year academic scholarship. It was a lot of work - but well worth it!! Let me know if I can help you!
Trooper

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jennie1 April 29, 2009


Thank you - How did your son receive support? ie school, outside therapies? Our child is 14 and recently diagnosed, so didn't have early enough interventions (he's severely depressed & in crisis). We are facing battle with school not supporting NLD diagnosis AND trying to figure where to go to acquire org. and social skills. School wants to address "emotional" issues. Would appreciate any input / advice. From heartbroken mom

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emerel April 29, 2009


I am fighting the school as well for my daughter. It is hard because they try and make the parent or child wrong. I hired an attorney and am calling her for my last hour so I can get some support. It is hard for them to see what they do not understand. It looks like it is the kid or an overly involved parent. Neither a school likes. I am sorry you are struggling. I would like you to email me privately so I can give some more information but it is not allowed. So let me think about it. Where are you located.


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healthy11 April 30, 2009


jennie1, I'm sorry to hear of your struggles, and wonder if your son also has an ADD /ADHD-inattentive diagnosis? Unfortunately, NVLD isn't a "recognized IEP eligibility category," but it frequently occurs with the non-hyperactive type of ADHD, and that could allow your son to receive services under the OHI (Other Health Impaired) eligibility category, rather than ED... Organizational difficulties/executive function difficulties are very common with people who have all types of ADD/ADHD.
If you want to talk to other people with a great deal of experience dealing with NVLD, please join the Learning and Attention Difficulties Group at http://community.greatschools.net/groups/11554, and/or www.millermom.proboards107.com



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