By Marshall Raskind, Ph.D. , Malka Margalit, Ph.D.
What does research tell us about children with learning and attention difficulties, and their relationships with their families? In this summary of the research, Marshall Raskind, Ph.D., and Malka Margalit, Ph.D. share their expert perspective in practical terms for parents like you.
Learning disabilities (LD) not only affect the individual with the disability, but can also have a substantial impact on other members of his family, and the family as a whole. Although there is considerable research regarding the impact of LD on the individual, there are relatively few studies on how LD affects the entire family. Additionally, the studies that do exist often report conflicting findings. This article will provide an overview of the research findings on how LD may affect parents, siblings and the way the family functions.
Several studies have shown that considerable stress is associated with raising a child with LD. One study found that mothers of boys with LD are more anxious than mothers of boys who don't have LD (Margalit & Heiman, 1986). This finding is similar to results reported by other researchers (Fuller & Rankin, 1994) who found that mothers of children with LD experience more stress than mothers of children without LD who are in general education classes. A study by Dyson (1996) on parental stress, family functioning and sibling self-concept also found greater levels of stress in parents of children with LD when compared to parents of children without LD.
Similarly, a study by Antshel & Joseph (2006) showed that mothers of children with LD report higher levels of stress than mothers of children without LD. Of particular interest in this study is that the kind of stress experienced by mothers was related to the type of LD. Mothers of children with reading disorders had greater levels of general stress, but mothers of children with nonverbal LD reported poorer interactions with their children. This study also dug deeper into specific child and parent characteristics associated with maternal stress and uncovered that the severity of the LD was associated with higher maternal stress in mothers of children with nonverbal LD, but not in mothers of children with reading disabilities. In children with reading disorders, maternal stress was related to the mother's age (younger age/more stress), psychological difficulties and presence of social support.
Other researchers have also shown the relationship between specific child characteristics and parental stress. For example, higher levels of stress are associated with children LD who are less socially competent and display more behavior problems (Dyson, 2003; Landieri, Blacher & Swanson, 2000). These studies illustrate the many factors that intertwine and potentially contribute to the stress of raising a child with LD.
Some research suggests that siblings of children with LD may develop low self-concept (Purkey, 1970; Atkins, 1991). However, the study by Dyson (1996) mentioned above failed to support this idea. Using a standardized measure of self-concept, 19 siblings of children with LD (ages 7-14) were compared to 55 siblings of children without LD (ages 7 1/2-14 1/2). Results of the study indicated no significant differences between the two groups of siblings. A small study that interviewed eight families of children with LD (Waggoner & Wilgosh, 1990) found that siblings of children with LD may feel ignored by their parents but have to come to terms with receiving less parental attention.
However, Dyson (1996) reported that almost half of the parents in her study found siblings to be patient and understanding of the sibling with LD. In fact, only one parent reported "sibling resentment over the parents' excessive devotion to the child with LD" (although the parents themselves often reported feeling guilty for neglecting their children without LD). Nonetheless, this study also found that 19% of parents reported negative experiences between siblings including the child without LD being teased by the child with LD, fear of the child with LD and copying inappropriate behavior of the child with LD. Other research on siblings of children with LD (Landieri, Blacher & Swanson, 2000) found that children with LD and their siblings held strong feelings of love and affection for one another and that they thought very highly of their brothers and sisters. These findings are not significantly different from the reports made by siblings of typical children. Furthermore, findings from this study indicated that having a sibling with LD did not produce significant evidence of differential treatment by parents or sibling rivalry.
Research on the effects of a child with LD on how the family functions is somewhat conflicting. Studies have indicated that families with children who have LD tend to emphasize more control, orderliness and personal achievement than families of children without LD but they also experience more family conflict. At the same time, families who have children with LD may provide fewer opportunities for intellectual and recreational activities as well as less encouragement of free emotional expression and personal growth (Margalit & Almougy, 1991; Margalit & Heiman, 1986a, 1986b).
Another study found families of adolescents with LD experience less family cohesiveness and less communication about family problems than families without LD adolescents. However, this same study also reported no differences in family functioning or adjustment (Morrison & Zetlin, 1992). Still other research has reported that family patterns of children with LD fall within "normal limits" (Parker, Hill & Goodnow, 1989). It should also be stressed that some studies have found that despite the difficulties experienced by families of children with LD, there are also positive effects on the family including enhanced "family strength" and personal values (Waggoner & Wilgosh, 1990).
It's important to emphasize that the impact of LD on the family depends upon multiple factors including the specific characteristics of the child with LD, the parents, the siblings and the family as a whole. It should also be stressed that contextual conditions such as relations with schools and community resources, including the availability of remedial help and counseling, may serve to mediate stress in the family (Shiota, 2006). With this in mind, it's important to understand that the studies reviewed in this article may not necessarily be relevant to, or representative of, your family or families you know who have children with LD. However, this review of research provides insights into the impact of LD on the family and contributes to an understanding that may enhance family interactions and the well-being of individual family members.
There is also one last research finding that I would like to share from my own study of LD across the lifespan (Raskind, Goldberg, Higgins, & Herman, 1999). My colleagues and I found that despite the struggles that may be faced by families of children with LD, adults with LD show great appreciation towards their families for the support and sacrifices made along the way to help ensure that that they would lead successful, satisfying and personally fulfilled lives. That is something family members should keep in mind as they confront the potential challenges of a child with LD.