"My brother was diagnosed at age 3. He's eight now, and I'm fourteen, and
life has just gotten more difficult. Sometimes I feel like I'm the only
one who is thinking logically, as every one else, including my family,
always asks "When is going to be normal?", "Isn't there a cure? I sure
wish there was." No, there isn't. I know the only reason he ever gets
angry or upset is because he feels he has no, or a limited, way of
communicating his feelings to us, but sometimes it honestly feels like
there's no significant help out there. And anything like a cure, is just a
"actually the latest studies show that children move off the spectrum and
develop typical pathways when intervention is done early enough in a small
minority of children. UC Mind, UCSD, PENN State and Yale have all
published papers demonstrating that if intervention is begun as the brain
is in it's early stages of connectivity, ABA and other therapies can
correct the neurology. This was written in the NY Times in 2005... At
this point in the autism research world it's ancient history. This is why
there is such a great emphasis on diagnosis before 24 months.
"Our son was diagnosed at the age of 4 with autism. I too was told that
there was no cure, help of course, but nothing that would take it away.
Over the years, I researched, read, and studied different interventions.
Some I tried, but most didn't seem to fit our particular situation. Then
I tried the gluten-free diet. One month in and I have a different boy.
His emotions were much more stable, he could handle sarcasm and playing
with his brothers- the family was amazed. Nine months in and the school
could no longer classify him as autistic after doing his regularly
scheduled testing. I'm not claiming it's totally gone, but most people
don't believe me when I tell them he has autism. We've had some slight
setbacks - hormones have come into play, and we are doing some more
dietary testing. I am hopeful, and I consider my son to be a 'recovering
autistic'. I believe that with the alarming rate of autism today we are
looking at something environmental and or dietary. !
I believe that there is something to the dietary interventions that are
out there - they may not work for all, but please, don't call it a fairy
tale. What we have experienced is real, and I never would have kept at it
if it weren't for the testimonies of people like Jenny McCarthy and others
who kept saying "keep trying - keep looking".
"I think the biggest fallacy in treating autism is that every treatment
works for your child....at least to some degree. Much like other children
every child with autism is unique and no one treatment works for
everybody. You just have to be able to stick it out and keep trying things
until you find what works and then build on it....if you can. That is the
hardeset thing in my mind, knowing when to stop a treatment and start
For my son, it was all about getting his body healthy. He still has a hard
time picking up weight but it turned out his body was reacting to wheat,
gluten, dairy, cassein, soy, rice, chicken and just about anything else
that a normal kid could eat. It took almost three years to determine
EVERYTHING that was wreaking havoc in his body. But once we did, he made
amazing progress. He will always have autism....I am sure of that now. BUT
I am confident he can conquer most of it, and lead a life that he can
enjoy. Nobody understands what we as parents go through, and I just plead
with you not to beat yourself up about it and not alienate yourself from
your freinds and your friends who "don't get it". They can't possibly, and
its unfair to expect them to. Harboring that anger and resentment towards
others who don't deal with a child with autism....or just YOUR child with
autism.....just means that Autism claims you as another victim. Celebrate
your child and love them for who they !
are, that will do more for them than any therapy session ever could and
it will help you to.
"Everyone's experiences will be as individual as the children themselves.
My son has gone through a program called Brain Highways, and it has
changed our lives in ways unimaginable. Our home is peaceful and no one
would know the challenges we had in the past with our son. Our friends
can't believe the changes in his behavior. Then I ended up eliminating
wheat/gluten and dairy as well as red dye from his diet and what changes
came from that! There are ways to help our kids but we shouldn't feel the
pressure to "cure" them. Just to clear the way so they can be who God
created them to be. God made them wonderful!
I am also a mother of a soon to be 13 years old autistic boy. He has
improved so much, from a silent little boy, to a talking kid. But,
yes,,,he doesn't talk like other kids his age.
I used to be so obsess of making him to be just like other kid his age.
Now, my goal, and I should also admit my fear is to help him to make the
best out of what he has. He is very smart, but not his communication
level is way below his age. I am not sure how I can help him to be self
independent. I would love to connect with other parents facing the same
"Cammie's points are very true - progress will seem agonizingly slow at
times, you won't have a miracle cure, but you will probably eventually be
relieved and delighted to see that your child has a friend, or shows
empathy or plays beautiful music. These children often have refreshing
gifts, like stating simply and clearly something that everyone else thinks
but doesn't dare say out loud, because they are not burdened by all the
social constraints and rules that the rest of us are. You might mourn the
lack of an 'easy' child, but you can joyfully celebrate the victories of a
"As a parent of a 7 year old with past diagnoses of PDD, ASD, ADHD, and
apraxia I am living proof that 'recovery' (or whatever you choose to call
it) is possible. Yes I agree it is not easy. We committed 3 solid years
and hundreds of thousands of dollars (luckily the DOE paid for most of his
intensive ABA program)to constant intervention, treatments, schooling,
testing, etc, but we were one of the very few lucky families to have our
child respond to most therapies we tried. Because I have a backgound in
the medical field (Pediatric ICU nurse for 20+ years) I can even better
understand that our kids with autism are not healthy and have a difficult
time learning due to their health. Biomedical interventions (diet,
antifungals/antivirals, supplements, chelation, HBOT) cleared my boys head
and body so that he can now learn and I would do all again to see my son
develop into an amazing, thoughtful, sweet, hard-working angel who is
fully mainstreamed into a regular 1st grade clas!
sroom who receives Fastforward, speech therapy and a reading program. He
has lots of friends, plays baseball, basketball, football and soccer and
is quite a good swimmer. My message to you is, every child with an ASD
diagnosis has the potential to improve...and who does not want that for
their child. Please don't lose hope for your your child."
"As a person who lives in a house where 3 out of 4 people are Autistic.Call
my twife The Odd 1 in. I just want to say I personally dont wont to be
'cured', I just want understanding. "
This is an interesting story. Unfortunately, the problem is, since we
have no idea why 1:110 kids now are being diagnosed with ASD, we clearly
CANNOT state with ANY certainty that it is incurable. One person's
experience is just that...one person's experience. In addition, all
autism is, is a set of symptoms. It is well known that these symptoms
change over time for some individuals. "
"I have to wonder if some of the posts are biased here. I have seen my ASD
girl, who is 8, improve with time. I read from an autistic adult, which
was enlightening, that also autistic people develop! I have two friends
with severely autistic children who did not vaccinate! So, what can they
blame for their child's condition!
I am sometimes tired of hearing from well-meaning friends who know bout my
daughter's condition to check out Jenny McCarthy. Well, I noticed that
Jenny never shows her son's progress. Says he totally cured. Where's the
Where there's an incurable disease, out come the opportunists. Sure, some
therapies are helpful, and children do thrive with attention and good
diet, exercise, etc., but the pressure for curing your child is too much.
The autistic adult said that it's just as helpful to actually spend time
with your child as sending them to countless therapies. The same is proven
for neurotypical children. Go figure.
I have had acquaintances and friends get mad at me for not going for
various 'cures,'like expensive vitamin drinks, homeopathy,etc.
"Well of course there's no cure. BUT... while my son still has a diagnosis
of Asperger's with sensory disorders AND AD/HD, we just had his 7th
birthday party where he invited every last child from his entirely
mainstream first grade class and not ONE child there and not ONE parent
would even guess there's a thing different about my wonder boy, never mind
that he's a child with autism who receives special education and
additional support services. In our case my son went from a non-verbal 18
month old child, tip-toe walking, hand-flapping, tantrum-throwing,
furniture climbing, eye-contact avoider to a nearly 100% mainstream, very
typical child. Still quirky. The autism is there- always will be, but it's
happy to stay under a few layers of otherwise highly regular kid. No
flapping and so much talking sometimes I think 'oh boy, did I wish too
much?'. He finds his sisters annoying, homework a pain, and likes to play
dinosaurs and commandos on the playground with his peers. Most g!
irls but one he likes are gross. In other words, normal. Fine. Typical. I
agree, after the work I've put in to my child and the work he continues to
do for himself, we're not cured but it's hard to not think of it that way
when I go back 5 years to who he was then, and who he is now. "
"As the mother of a 9 year old who was diagnosed with ASD at 2, I can
assure you that although 'cure' may be a strong word, a sense of normalcy
can be attained. Through years of hard work and sacrifice on many fronts,
my son is thriving in a Spanish immersion school. He is fluent in Spanish
and English and is learning Mandarin as well. He has friends, was
identified for the Gifted and Talented Education program, and participates
in chorus, science club, and the school news station. I still notice his
quirks, but many other teachers on campus are shocked when they learn he
is on the spectrum. No child is perfect, but I am a mother who finds it
hard to say my son is not 'cured.'"
"Thank you!! I knew it already. My son is 12 yrs old and I still waiting..."
"thank you...believe me the countless exhausting hours spent with my child
pay off everyday and sometimes it seems never ending. It is nice to hear
that though it may be rough there is some hope of although maybe not a
cure but some possiblity of getting better. Its amazing how hard you can
see your child work only to fail and it not be his or her fault. One can
only pray that somehow their life will eventually be easier someday and
that they will be able to function on a higher level."
"Just wanted to say THANKS for telling it like it is! At least, as parents
of a special needs children, we can all relate."
"I guess it all depends on what is understood as 'recovery.' Having a
warm, parental relationship with an ASD child who was otherwise
unreachable as a toddler should be considered 'recovery.' Being able to
converse with a child who was nonverbal should be considered 'recovery.'
My dear friend believes his ASD daughter is fully recovered from her
diagnosis because he enjoys both of these things. Is she 'perfect?' No
-- but no kid is perfect, neurotypical or otherwise. I agree that being
realistic is key. If you're up to it, please read this book: 'Send in the
Idiots,' by Kamran Nazeer. It's a book written by a man diagnosed with
autism as a child, who sets out to visit his former special ed classmates.
The stories are sometimes heartwarming, and sometimes heartbreaking.
Nazeer is an excellent writer, but still has difficulty in some social
situations. Is that 'recovery?' I'd say so."
"Before you buy into ANY learning disorder and treat them with drugs, are
you feeding your child whole, organic food and a well rounded diet?
Learning and behavior disorders are quick and easy to throw medicines at
that have both KNOWN & UNKNOWN LONG TERM effects. Are you doing the most
you can to avoid chemicals, excitotoxins and other nervous system taxing
food (neurosurgeon and researcher Dr. Blaylockf's research and talks can
be found on utube for free), allergens?
There are no 'miracle cures' but a lot of research and exhausting hours of
dedication and hard work have paid off for me and others I know.
There is an amazing physician who has had amazing results with autistic
children and others with 'behavioral' disorders that are controlled with
avoiding foods, supplementing with whole food vitamin nutrition based on
the needs of each individual, deactivating the continuously damaging
immunizations. He uses nutrition, allergies and state of the art medicine.
He is a gift. www.drkaslow.com. Also a homeopath that has had amazing
results in our family and others with Nutrition Response Testing and whole
food supplements: newlifeholistic.com Dr. Jason Coping. Both are
There are no 'miracle cures' but with a lot of research and dedication you
can help you child have a functional and more rewarding life. They
deserve your help.
I have been there and it is exhausting, but these resources have all
played a huge role in not only my son's recovery, but many others I know
Most doctors are taught to treat symptoms. You go to them to stop a
symptom or an outcome of a problem. But they are not taught to get to the
cause. The doctors above are some of the very rare few that look beyond
the symptom and start treating the causes and building the systems that
were damaged by the cause(s).
Your children are worth your dedication and work. Once you are on the
right path, it gets easier. I noticed a difference in 4 hours after Dr.
Coping put my son on some simple supplements. Then Dr. Kaslow is now
taking that to the next level, deactivating the damaging immunizations,
doing additional research, etc. You need to be knowladgeable about how
every thing that your child eats and comes into contact with effects their
body (and yours). Dr. Blaylock has some amazing informaiton on how food
reacts in your brain and what it does to the nervous system. F"
"As the mother of a 13yr old son I found this article very insightfuland
true. It is good advice for parents just beginning the journey."