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PDD-NOS (high functioning autism)


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GreyParrot December 13, 2007


My son is 12 yrs. old and has PDD-NOS.  I am happy to give whatever advice I can to parents of children with similar needs, plus I would love to hear from parents who have PDD-NOS teenagers or young adults.

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chester123 July 21, 2009


My son is 15.5 with PDD-NOS he is very unhappy at the public high school he attended for 9th grade. I am seeking alternatives, appreciate if you can share your experience thoughts with me.
Thank you
Tal

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MSMomm July 22, 2009


Hi chester123:

Welcome to Greatschools and the parent community!

I'd like to invite you to join the Autism & Asperger's group: http://community.greatschools.net/groups/18940. I've posted a lot of helpful information there to assist parents in similar situations.

I'd also ask that you repost your question there, and please provide a bit more information about your situation, and what state you're in so we can better assist you.

Looking forward to seeing you in the Autism & Asperger's Group!

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smitty2391 March 25, 2010


Hi my son is 10, and was just diagnosed with ppd nos. His biggset problem is academically. He shuts down when he feels something is to hard, and gets aggressive with other children when they stare at him or ask him questions he feel he doesn't know the answer to. I feel he does not try when it come to school work. He is very clumsy and doesn't care about his appearance. He cries at the drop of a dime He just began to try to make friends, but deosn't know how to go about it.

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Almesa March 31, 2010


I have a 11 year old daughter just diagnosed with PDD - NOS.
My biggest concern even though academics is slow is social skills.

SHe's involved in alot but I feel like she is all alone.

Any suggestions on how to help friendships blossom.


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kimberlee46 April 2, 2010


My son is 15 yrs old and was just diagnosed with Aspergers .... he is a child who desperately wants friends but cannot seem to figure out how ... he does have one friend who also has PDD ... but he is always wanting to ask him to do things and I am trying to help him ... but he just needs to figure out how to do it. I have not put him in the other activities with other children ... because he has trouble getting into the circle ...My fear is that being 15, the times of his childhood are passing him by ... and that is just verrry sad for me to watch this terrific kid watch on the sidelines ..... Advice of any kind is VERRRY Welcome .....

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gillihan89 June 11, 2010


I have a 15, almost 16 year old son with ADHD, PDD-NOS, Nonverbal Learning Disability. He was identified between 7th and 8th grade. He started to really struggle in 5th grade with the social issues. However, before that he struggled with school organization and the amount of work he was being asked to do. At every conference I attended, I asked 2 basic questions, how is he socially and why are his standardized test scores so low. I always got the answers he is fine socially and he doesn't finish the test. We did get a 504 plan in 4th grade. He began attending a therapeutic school in 8th grade and that was wonderful. Then he moved to a high school therapeutic program which has been wonderful. His IQ is 72. His verbal skills were in the 90's and all else was in the 60's and 70's. Our problem lies in his perception and reasoning. He does not make good choices. His reality is much different that ours. We really can't leave him unsupervised. We have had many therapist tell us they couldn't help us anymore, our situation was beyond what they could do. We have recently started with a new therapist who says he can help us. Puberty has not been a friend with all of this. At the therapeutic school he does not have to change classes and they go at his pace of learning--it takes him longer to process the material. He is too high functioning to qualify for services that are out there for "autism." I worry about adulthood and his ability to have a job or attend college. He does love basketball. He tried out for the high school team and was one of 4 cut at the second cut. He was the student manager. We do keep him involved with kids his age through sports at the Christian Youth Center and with camps at the high school. He also attends summer school. Any advise. I am a teacher and work in the field of education, but that is with elementary kids.

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gillihan89 June 11, 2010


I find this to be so hard as a parent. I work with other people's children everyday and can help them, but feel a failure with my own.

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antar44 August 17, 2010


My young adult was never correctly understood as having PDD-NOS, it took a therapist to see it. After years of frustration, I now understand why he is so smart, but has so many problems socially and now, motivationally. There is no help for him the this state (Nevada), but I am moving back to Oregon and praying I can find resources and help for him there..Anyone else in my boat. I am a teacher, but can't help my own son!

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mpmpparker November 27, 2010


To Antar44...Oregon has some great resources. Check out Trillium Family Services. My son is 12 and he had terrible uncontrollable rages that eventually led us to have him in a residential treatment center run by Trillium. They were great! Oregon also uses CPS, collaborative problem solving, across many of the state facilities and it is a wonderful tool to use with PDD-NOS kids. After staying at the center for four months, my son really learned great coping skills. I believe they have a great out patient program too. We live in Washington and could not benefit from those resources.

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mpmpparker November 27, 2010


Has anybody flown to Europe with a PDD-NOS boy around 12 years old and what planning and tools were used to help with anxiety and transitions during the trip?



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